Some good things today. Jen is still dragging but it is because her body is fighting. Her fevers today didn’t get as high and she was able to fight them off without Tylenol. Also her ANC is just under 1000!!!
From Mom: Sorry for the delay. It has been a busy morning and finally getting chance to sit down and give some updates.
With the help of amazing doctors, nurses, family, friends, prayers, and hugs it appears we may start making the turn we need.
In your White Blood Cells ( I call WC or White Count) there is a number they call the ANC. This is the actual part of the cell that fights off infections. That number had to be over 500 before they would ever ever consider sending her home. Today it is at 700.
Now that doesn’t mean she is packing her bags. It does mean with that number up, she is in better position to fight off the infections. It also means her bone marrow is rebuilding itself.
She was very agitated this morning. Last night they put in a line to drain some water off. And it has done a great job thus far as fluids continue to come off. When these fluids come off, she will be able to move better and moving better will over all help her mood. She wants up! Which I am going to take as a good thing. She wants to go home. So with that to work with, we can push her to do things she may have been resisting before. She is fighting.
We should start to hear some results back today about the procedure she had yesterday and this will help them target the infections better. It may take a few days for complete cultures to come back but it begins to rule out things she no longer needs.
She is still fighting fevers but that means her body is fighting. Her Oxygen level has stayed well enough she hasn’t needed to be on a vent but just a flow of air…I think they said at 4 liters..if that means anything to some of you. Her heart rate, although higher at rest then they like, didn’t increase much when they sat her at the side of the bed and moved her into a chair. And when in the chair, it comes down from @ 135 to the low 120s. The high heart rate is her fighting the fevers and the water retention.
Matt joining me did wonders. I was able to sleep knowing there was an extra set of eyes and ears through the night. I am not sure if he is able to stay tonight but I do know he does need to go back tomorrow as Heather has to work, as does Randy so he will be with the dogs. Unless we have Dex go to someone’s house and say during a few hours of transition. Stupid dogs! But goodness we do love them.
I will keep you updated as I can. Remember no news, means good news and when things go down hill, I go to panic and start to reach out to others. Me no panic = things going better.
Thank you again! You all have been so amazing to help lift me, Jen, Randy, Jess, Matt, and Heather up. We couldn’t do it without you.
Love ya all!
Monday December 19
Tomorrow at 2pm they are going to scope into jen’s lungs to see if there is a fungal infection. The CT scan over the weekend showed some small spots…he called bruising. They hope this is what is causing the fevers and then they can figure out how to treat
Sunday December 18
Alas, Jennifer had a better night sleep. They found her the right combination to help her relax. Anxiety was getting the best of her, especially having to wear an oxygen mask for several hours. About 5 am, Huxley (what we have named her fever) broke. Hopefully he stays away.
Randy stayed with Jen, while Jessica and Matt took me to get some rest at a hotel close by. Since staying at holiday Inn express makes you simply brilliant, we all are now better equipped to cure Jen.Heather stayed back at home to watch after the two small dogs, while our big puppy Dex got to attend the Fischer family Christmas thanks to my sister Sue. If it wasn’t for the help of Heather and Sue, I would be so lost right now.
I don’t know the plan for today for Jen but hopefully it includes a dance towards healing and finding out how to make this horrible rash, which we have named Rhys by the way, go away.
This evening, Jess and Matt will head back home and Randy will be here with me through early Tuesday. Thank you for the continued prayers. Even if we are here next week over Christmas, it is a blessing to know we are together with and so much support back home.
Update from Randy
Update time….well things can change on a dime here….after her fever broke about 5 ish this morning the day was pretty uneventful until about 3 when she was up going to the bathroom and got lightheaded and a little panicked, started coughing and threw up. This started a chain of events and a lot of attention from many nurses and docs that resulted in a lot of anxiety for Jenny. She had a chest xray and a chest ultra sound to make sure she did not take any material into her lungs. She was given some Demerol to calm her. Over the next several hours things calmed down and right now she is doing very well. The rash is starting to subside, which is a very positive development and that may spark a general rebound. The main concern right now is that she doesn’t develop pneumonia.
There is talk of icu to get more one on one care
but since she is doing better that is on hold.
Saturday December 17
Things here have declined over the last several hours. They have moved Jen to 14 floor to get more personal care. Jen’s pulse oxygen levels are low and her fever back. They have her on a cpap machine to improve her breathing. The doctor thinks this ugly rash she has is causing the fevers and most likely is in her inside as well as her skin. You can see the rash inside her mouth and throat.
She has swelled with water retention but with a low BP, they cant give her anything to take swelling down. I have called to ask Randy and the kids to come down to give me some rest and be close for Jen. The doctor says the next few days will be difficult but hopefully we can keep her from getting worse. Please pray God gives her the strength she needs as she has to battle through some bad days.
Randy’s boss scrambled to find coverage so he could be here. Although we have depleted all his sick time and vacation, this is where he needs to be. I am thankful he is able to be here as i am needing him by my side.
Prayers as she has been having a difficult couple of days. Little sleep and very uncomfortable. It’s so heartbreaking.