Her fever has come and gone a couple times now. They expect this will be the case as we go through the next several hours as the Tylenol wears off. They have assured me this is normal for her counts low and as long as everything like bp remain normal, she will be ok. It is still very hard to watch as nothing worse then watching your child be so weak. I don’t expect I will sleep much tonight but then sleep is overrated.

Thank you for all your prayers and support. We have been so blessed by having this army of family and friends through these difficult days. Randy,Jessica, Matt, Heather, and of course Jennifer couldn’t do this without you.

A Month In

Today we are a month in from Jen’s diagnosis. And although we won yesterday’s battle, there are many battles yet to fight.

Jen is running a higher fever today and it is being stubborn. So they have her packed in ice. Her shivering is beginning to calm which is good as she looked miserable.

Her rash is back again worse than before. It may be fever related but until they are sure they are stopping the clinical trial drug again. She just had a chest xray to make sure there is nothing there to be concerned about.

Days 14-21 are the hardest they tell us, and that surely seems to be true. Her WBC is rock bottom at a .2 and so fighting infections will take diligence and lots of antibiotics. And then after day 21 we should see those numbers start coming up. We are at day 16.

We talked more to the doctor about the future plans. Sometime in the weeks ahead, she will be prepared for a bone marrow transplant. At day 28, she will receive another biopsy to see if she has remained cancer free (another battle we are ready to fight). If she is, this is what they then label as remission. This will give green light to move forward to the next battle.

The transplant will require 100+ days of inpatient and outpatient treatment. She will need to live here in Columbus through all that. When talking to my brother Rick yesterday about all my fears about this, he reminded me to enjoy today’s blessings and trust in Him to provide for the days ahead. I need to hear that sometimes.

Please continue to pray for Jen. Your prayers I believe are giving her much strength. We are so impressed by this.

Wrist Bands

Rally Together with Jennifer Wrist bands are in!! Child and adult sizes available. I will let you know where you can pick up one as we have locations come available. Available at Main Street Market in Ottoville, The Gentry in Ottoville, and at my house.
Limited quality available.
$5 each. Adult and child sizes

17

Cancer Free!

From Matt

GOD IS SO GOOD!! THANK YOU EVERYONE FOR THE PRAYERS BECAUSE MY SISTERS BONE MARROW SHOWED NO SIGNS OF LEUKEMIA 😁😁😁😁😁😁 NO NEED FOR CHRISTMAS PRESENT BECAUSE THIS IS ENOUGH FOR ME!! THANKS ONCE AGAIN FOR THE PRAYERS EVERYONE YOU ARE ALL AMAZING PEOPLE!

 

From Jessica

So I’m walking around the grocery and my sister calls. She tells me a few things about her day. She has a rash, they took out her line, etc. She buried the lead! Her initial biopsy results from yesterday show no leukemia cells or blasts at this time! It doesn’t mean remission yet but it’s a step in that direction!

A Word From Jen

Today is Day 14.

I had a bone marrow biopsy today to see how the chemo has worked. Fingers crossed that I won’t need any more. Once I go home they will do another biopsy usually the wee following to see if I am in remission. We should have the results sometime tomorrow.

I have been running a low grade fever off and on for days. Every time my fever goes to 100.4 and over they have to do blood labs from my line and from my arm to look for infections. I have been on antibiotics for almost a week to help kill off what my body currently can’t. The blood cultures they do take up to 5 days to come back.

One of my cultures did show an infection in my central line. They are running more labs to see if it is still there since it was days ago that the culture was done. They don’t believe the infection is in my blood stream.

But with it being in my line they may have to remove the line for a few days and put a new one in after the infection clears. If they do this they will have to put an IV in which they have had trouble find a vein for.

I’m pretty tired today. I got a unit of platelets today and will probably get another unit of blood tomorrow since they took so much from me today.

The art therapist came in today. Although I was too sore and tired to do much we did talk quite a bit which was good.

Although I’m tired and sore I am feeling pretty good and continue to stay positive and take things one day at a time.

Please keep the prayers coming and remember to appreciate the small things. Although it’s cold and snowy enjoy the cold air on your face, the way the snow flakes fall to the ground, or the way the snow sounds as you walk through it.

We take those small beautiful things God gives us for granted. Although I am not a winter person and the snow and cold is not at the top of the list of my favorite things, but they are on the list of things I cannot enjoy right now.

Appreciate and love those little things.

God bless!