I’m back here in Columbus with Jennifer. She is still making others on the transplant floor look bad as she has rolled through day +8 now without fever or vitals being an issue. Her and I went to the support group meetings they have here for patients and caregivers. The nurse and social worker were amazed someone at day +8 allogeneic BMT (meaning non related donor) was up and going to a support group meeting.
Having said that, I can tell you Jen is feeling fatigued. She still cannot overcome this cough and she told me this evening she just can’t get comfortable and rest like she wants. She fought tears back while telling me this. So now I’m on a mission to find her some relief. I pride myself in being persistent. …. aka Momma Bear.
We found blessings everywhere we could find them today, …maybe more me than her. Her grandparents stopped in Columbus on their way back from Florida. It is the first she has seen her grandpa since her diagnosis and first she has seen grandma since early December.
I also found a blessing or maybe knowledge I needed to find today at the support group meeting. I had questioned us going as I thought maybe Jen would just want to rest. But we went. There have been times, I hope for Jen to be excited about something or looking to go do something she has been wanting to do. I want the world for her and will move mountains to make it happen. But sometimes as I am spinning circles moving mountains, she just wants to stop, rest, and heal. For a while even small things can seem overwhelming. Reading text messages and responding, opening a card, calling her insurance company, or filling out a form. I find myself repeating to her what needs done like a mom of a teenager. I actually realized this has been ongoing for nearly a year. Which makes me wonder how long she fought low counts and fatigue. I thought before cancer this was due to laziness. After her diagnosis I thought it was a sign of her surrendering to her illness. I was wrong on both counts.” It is cancer, chemo, and healing. I needed to learn that.
So prayers tonight for a quieted cough, less fatique, and patience on my part. She will get through all this. And so will I.